Archive for June, 2011

Diagnosed With Lung Cancer at 24

June 28th, 2011 - by admin

by Heather Geraghty

On December 28, 2010 I was told that I had lung cancer.

It didn’t seem possible. I was only 24 years old! According to the surgeon, the tumor had been growing for years.

On January 20, 2011 I had two-thirds of my right lung removed. I had 23 of the longest days of my life knowingly living with cancer, and when it vanished from my body the shock of knowing still remained.

After surgery everyone who had surrounded themselves around me had returned to their daily routines, but I was still left wondering “how could this happen to me?” I thought to myself over and over again “What if I never found out? Would I still have lung cancer right now?” My lung cancer seemed to come and go so quickly from my life, and when it was gone I didn’t know what to do with myself. I felt alone, I couldn’t talk to anyone because nobody could relate to me. I felt scared, not only had I gone through painful surgery but I didn’t want the cancer to come back.

My friends didn’t understand which made it difficult to talk to them about any aspect of my cancer. During this time I was surprised to see faces of people, especially those who showed their concern. I was more surprised when I didn’t see the faces of people who I thought would be the most concerned. This was the first time in my life that I felt completely helpless. Simple tasks such as sitting up in bed, walking from one room to the next, and taking a deep breathe were significantly difficult after surgery. My mom and dad were the most impacting during my recovery, and still remain my biggest supporters to this day.

At times, even now, it is still difficult for me to admit to myself as well as aloud that I am a lung cancer survivor. Many days it doesn’t seem real, and I don’t believe that it has happened to me. Lung cancer has changed my whole perspective on life, which has forced me to refuse to take anything for granted.

My first check up is in August, the first of many to come in the next 2-3 years. And I am terrified to be told that the cancer has come back. Since experiencing lung cancer, I have been horrified to find that there is little known about this cancer, however, many stereotypes exist. Recently, I met someone who told me that “anyone who gets lung cancer did something to deserve it”. At first this made me angry, but then I felt defeated because I realized many people in society feel this way about lung cancer.

I hope to change this perspective with the support of an organization called LUNGevity.

The LUNGevity Foundation raises money and awareness for lung cancer research. I have found a family within this organization that has given me hopes for my future and the future of lung cancer. Since connecting with LUNGevity I have dedicated my time to organizing the 1stannual lung cancer fundraiser for LUNGevity at Café Fontana’s in Maple Shade on September 7, 2011 from 7pm-10pm.

The objective of this event is to confront, promote, and speak freely about the many faces of lung cancer in order to begin erasing the stigmas. Proceeds will benefit LUNGevity. Tickets are $50 – food, drinks, music, 50/50 cash raffle, Chinese auction, door prizes, and more!

To purchase tickets and for more information please visit: www.heathergeraghty.blogspot.com or call (609) 330-3617.

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A Tale of a One-Lunged Triathlete

June 28th, 2011 - by Kathy Smith

So I am not exactly sure where this story begins but here is what you need to know:

I lost my left lung to a rare and aggressive cancer in 2005.

Nope, I never smoked.

I was DX a month after my 29th birthday.

And most importantly, Strong is the New Skinny!

SO most people get cancer and lose a ton of weight.  The chemo diet is the most effective weight loss plan on the market but not me! No I get cancer and GAIN 80 lbs. As if that wasn’t bad enough, the maintenance meds are making it impossible to lose the weight now that I am cancer free.  So I am in my early 30’s, down a pretty important organ and up way too much in weight!  I would say to you the word frustrating, but it is a bit too mild.  I would say it isn’t fair, but that would be whining.  So I will simply say fat is better than dead.  I don’t worry about the number on the scale.  It isn’t all that important.  What I do worry about is being healthy enough to run around with my niece and nephews, about being able to help my friends move, about playing inner tube water polo at the Y in the winter and about being able to climb the stairs at Gillette Stadium to watch my Patriots win.  So I figured I better get the heck off the couch and start doing something.

I will be the first to admit that “doing something” and doing a triathlon is not necessarily the same thing, but I figured why not… I won’t win but at least I will TRI..(Get it? TRI?)   The idea came to me about a year and a half ago.  A friend was training for her first TRI and was having a blast.  I have always enjoyed cycling and pretty much grew up in the water so swimming and biking seemed like a good fit.  I thought if I ignored the fact there was a run at the end of the race that everything would be fine.  I hate running.  I really, really hate it.  It is definitely a TWO lung sport!  The O2 your body needs to keep pushing forward while running is amazing.  The fact that anyone can do it is one of the miracles of the human body.

I attempted to do my first event last summer.  It was a disaster.  It was 95 degrees with 97% humidity.  I threw up a couple times and have no recollection of the run, but they tell me I finished.  I decided that didn’t count.  I want to enjoy a triathlon not just be in it.  So the Minuteman Sprint Tri in East Freetown MA became my new goal.  I am not going to worry about time.  I am not competing with anyone but me. (Okay and maybe the Doctors that said I couldn’t). I just want to jump in the water and enjoy the day.

I have been doing a lot of cardio work this winter.  Combat Cardio to be exact.  It is like kick boxing on crack.  We work our butts off. Literally. I love it.  I can’t keep up with everyone, but I love it.  They have fancy functioning respiratory systems and don’t have to chart the meds they take.  So I don’t worry about keeping up.  Sometime I worry about standing up but not keeping up.  Most of the women in this class have lost an average of 40 lbs since they started.  I have only lost 15 lbs, but I am stronger than I have ever been.  Not sure that being able to throw a mean left hook will come in handy, but I will put it in the tool belt.

Race day is June 18, 2011

It is the middle of May and I feel STRONG.  My legs are solid and I can ride for hours without looking back.  I love being in the pool.  Swimming is far from easy, but it is fun.  I am still ignoring the run, because I just can’t do it.  I run for 200 yards and gasp for air.  I can feel my heart beating in my ears.  I try to run a couple times a week, but I don’t get very far.  The cardio classes are helping.  But running hurts, and I am bad at it.  So I am staying in denial.  I am okay with that.

It is now June 5th.  Less than two weeks until race day. I woke up this morning dizzy and shaky.  My throat is nearly swollen shut.  I can’t swallow ice cream.  I have a fever.  I know that when I get sick I normally go all out.  Not colds or sore throats for me.  I get strep and pneumonia.  My doctors tell me this time it is strep with both ears infected.  My lung is clear but tight.  There are 13 days until the Tri, and I am given 10 days of antibiotics. Antibiotics make it tough for me to keep food in.  When I can’t keep food down, I always get a chest cold.  I am going to do everything I can to sleep and rest and eat, but it is going to be a long 10 days!

Race week

Monday:

Still on the antibiotics but I am starting to feel human.  I am nervous that my lung isn’t going to be ready for Saturday.  The infection traveled to my chest at the end of last week.  No pneumonia, but breathing was slow and stressful.

Tuesday:

In the water for the first time in 2 weeks and the last time before the race.  My time is 2 minutes slower than it was last time, and I am weak and exhausted when I get out of the pool.  Ugh!

Wednesday:

My nephew came by the house tonight and dropped off a special trikathlon (as he says) wrist band. I think it is one of those titanium things, but he told me it would help me stay strong while I raced.   I needed that.  I forgot this was supposed to be fun.  I forgot having strep throat wasn’t the worst thing that had happened to me.  I forgot there are a couple of amazing 6 year olds cheering me on.  I got stuck in my own head for a few days and it took Jack about 2 seconds to knock me right out of that… Thanks buddy.

Thursday:

Last day of the drugs!  A good night sleep and an excuse to carb load!!  Bagels for breakfast.  Pasta for dinner.  I am feeling excited.  Not ready but excited.  The weather is looking great and the water is reported at 70 degrees.

Friday:  What was I thinking?  Whose idea was this?  A triathlon?  I. HAVE. ONE. LUNG.

I am traveling to the race site tonight with 3 friends that are doing a relay team.  Thankfully, they are equally excited and nervous.   Woo-hoo…

Kathy Smith

Saturday:  GAME DAY!

I slept for less than 3 hours last night.  There were a couple of drunks in the hallway around 2 am that almost got to see that left hook!  I am feeling pretty good this morning.  The hotel started serving breakfast at 5am.  Funny to see a room full of spandex clad strangers inhaling food and scoping out the competition.  I am scoping out the waffles.  The competition doesn’t concern me.

At 6:10 we pull out of the hotel and are on the road to the race site.  I am in race mode now.  I am nervous, excited and still trying to figure out if there is enough time in transition for a nap. I set up my transition area like everyone else around me.  At least I look like I know what I am doing.  I need to get in the water before I start.  I don’t own a wet suit.  Thus, I am not wearing one.  70 degree water sounds great, but it is still cold at 6:30 in the morning.  I jump in to discover that my assigned swim cap is defective and isn’t cut open.  I scurry back to the registration tent to replace it and then back into the water.  Some of these people are pretty serious. I hope I don’t get in their way.  I am fully aware this is only a .25 mile swim, but looking at the buoys I am suddenly thinking we are swimming the English Channel.  We are 15 minutes behind schedule.  I don’t like late.  I don’t like it one bit… They finally call the waves into place, and we prepare to hit the water.  The ankle timing chips beep as we walk over the start mat.  I guess it is official.  I am doing a triathlon.  As I am standing in the water waiting for the go, I feel something touching my back.  I turn my head and there is a woman touching my scar!  I pulled away and she looked at me like I was crazy.  I said “excuse me.. Do you need something?”   She looked at me like I was the one out of line and said “just wanted to know what happened to you.”   I was annoyed yet suddenly grateful all at the same time.  “I had lung cancer.  Lost my left lung 5 years ago”.  Saying it out loud as I stood there knee deep in the water felt awesome.  I HAD LUNG CANCER, I LOST MY LUNG, BUT I AM STANDING HERE READY TO DO A TRIATHLON!!  I want to scream it at the top of my lung but there wasn’t time.  The clock beeped, and we were off!  I let the crowd pass and started my swim.  About three strokes in, I remembered that I hate fresh water lakes.  They are dark and you can’t see the bottom.  Panic set in quickly as I was instantly convinced that there were snakes in the lake and  they were after me.  Gasping is frowned upon when your face is in the water.  Laughing while you choke on lake water makes swimming hard.  The idea of one snake quickly turned to a pack of snakes and those snakes suddenly became cotton mouths.  The pack was simultaneously chasing me and fleeing from an alligator.  Let’s say that my breathing wasn’t exactly rhythmic.  I was moving through the water but form had gone out the window.  I could feel every breath in my lung.  I focused on inhaling and tried to remind myself of the days when inhaling wasn’t a given.  I could feel the muscles in my back pull as I extended past the surgical site.  It took me a lot longer to get out of the water than I had hoped but I did it, I got out of the water.  I ran into transition excited and still moving.  Time to hop on the bike.  This is my strong leg.  I will relax while I pedal and regain my breath.  I watched people fly through transition.  I kind of laughed.  I grabbed a quick granola bar and dried off my feet and got myself together before I took off.  Once I started riding, I immediately felt better. I started to pass people. I started to talk with folks on the course.  I had on my Lungevity T-shirt and people starting asking questions.  How are you doing this?  YOU had lung cancer?  I was suddenly a rolling PSA.  “Yes I am lung cancer.  I ride for the parents you lost, for the friends that have passed and for those who are yet to know this battle.” I only grabbed the inhaler once and came into transition feeling like I was invincible.  I hopped off the bike and switched to my running shoes, lost the helmet and grabbed my hat.  A quick drink of Gatorade and I was on my way out of the transition area.  Just about the time my chip beeped to let me know I was on the third and final leg I realized I had a 4 mile run ahead of me.  So much for invincible.   Denial is a great place to visit but a tough place to leave.  I jogged. Then I walked. Then I jogged. Then I walked.  This was going to be a very long 4 miles.  One by one all those folks I passed on the bike ran by me.  I was getting frustrated.  I would try to run for 2 minutes and then walk for 2 then run again but it wasn’t working.  I couldn’t get my breath and my heart was racing.  A quick look at my wrist and I remembered that my niece and nephew didn’t care about my time.  They didn’t care if everyone else on course was eating cheese burgers before I got in.  I started to think about friends I have lost to cancer and to the pain this stupid disease has caused so many I love.  I flashed back on the days when climbing a flight of stairs was a team effort.  I thought about what I was asking my body to do and marveled at how well it was doing.  I suddenly found myself at the mile 3 water station.  The timing chip had started to cut into my heel and there was a nasty blister forming on the ball of my right foot, but I was almost there.  I cheered for the cyclists flying by on the half iron man course and talked to the photographers and course marshals as I made my way to the finish line.  I ran the last 150 yards.  I crossed the finish line and was soon wearing my medal and grabbing a drink.  I had done it.  I finished a triathlon.  I had fun.  I didn’t pass out.  I didn’t puke!  I was pretty tired but really proud.  The heavens didn’t open and there wasn’t a parade, but I did it.  My body has officially gone from the brink of death to the finish line of a triathlon.  Who knew!

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A Personal Journey Toward Awareness

June 22nd, 2011 - by admin

“Why should I care? A Personal Journey Toward Awareness”

 by Juhi Kunde

Why should I care about lung cancer? A lot of people ask me that… Most recently I was meeting an old friend that I hadn’t seen in almost 15 years. When he asked me for the current recommendations to prevent cancer, I found myself sounding a lot like a mentally-unstable person warning of a coming doom – “Get a colonoscopy! Check your PSA levels! Wear sunscreen! And donate money to fund lung cancer research. You could have it and not even know it!”

My friend looked perplexed, “Did someone in your family die from lung cancer?”

“No,” I answered, “No family history of any type of cancer. We have stroke, diabetes, heart disease, but no cancer.”

“Do you smoke?”

“Nope – I can’t stand the smell, actually. You know that.”

“So, what’s with the lung cancer angst?”

“Angst?” I said with a laugh, “Yeah, I guess you could call it that. But if you knew what I know, you’d be a little angsty yourself.”

Conversations like this help me to understand how much misinformation is out there and how far I’ve come in my understanding of the disease and the obstacles facing lung cancer patients today.

I started learning about lung cancer when I worked for a cancer non-profit in Washington D.C.  There, I learned that some research was going on to develop CT scans as a tool for diagnosing lung cancer early. And, of course, the importance of not smoking was reinforced as that is a major way to reduce your risk for lung cancer.

But I also learned that lung cancer was a politically-charged topic, with research funding being hard to come by. Afterall, most people consider it a smoker’s disease. Many people think: Eh, the smoker’s know the risks and they are doing it anyway. This kind of attitude makes it difficult for legislators to earmark federal dollars for lung cancer research. At the time, the nation didn’t have a voice to speak up for lung cancer research. Legislators couldn’t hear the country demanding we stop the leading cancer killer in the country. So the research dollars weren’t there.

When I became a freelance writer and began to write for Protect For Lungs, and ultimately LUNGevity, I did a deeper dive into the numbers. It was scary – I learned that lung cancer is not just a smoker’s disease. Way too many people who have quit smoking or never started have lung cancer. And the disease is caught so late the mortality rates are horrifying. I’d sometimes imagine what I’d do if I was diagnosed with lung cancer, but there wasn’t a clear answer. I mean, sure I’d fight. I’d fight like everyone else. But how would I even know that I had it? How could you keep an eye out for it? How could you detect it early? You can’t. Not really. Not yet.

So, then I surveyed the other organizations involved in funding translational research to put an end to lung cancer now – it didn’t take long. There was only one. And, boy, was I glad I was involved with them! I saw just how the dire the situation was and how much hope and support that organization brought to thousands of people each year. And when I started interviewing lung cancer survivors and the people who had lost loved ones to the disease, I knew I had to help. I had to spread awareness and I had to help them raise money to fund meaningful research.

That’s what I do now. I help. And sometimes I even get a little angsty.

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Life is Fragile, Be Thankful

June 17th, 2011 - by admin

By Nikole Ventrca

Gone too soon.
It seems like it was yesterday.

My dad called and said he had emphysema, I began to cry and he replied “everything is going to be fine.” The next couple of weeks he went through a few tests and it was confirmed that he had lung cancer. I was devastated!

Immediately thoughts started going through my mind – “Please lord, let my dad make it to see my daughter be born”, “He’s too young, there are several milestones he still needs to see”, “I can’t imagine life without him”. We might not have seen each other that often, but from that moment on I called my dad every single day.

The next year my dad did not work and it was great seeing him more often then I ever had before. He got to watch my daughter be born and share in the joys of  watching her grow to be an amazing 1 year old. My son turned 4 a few months before he passed away, and he is lucky enough to remember my dad for the gentle and fun-loving man he was.

My dad turned 60 November 7, 2008 and my sister and I planned a party to celebrate. There were friends and family there and he seemed to be in good spirits except a little tired. A week went by and it was my son’s 4th birthday. My dad was too tired to come to the birthday party. He was the type of grandparent that didn’t miss an event, but a 4 year old party was just too much for him. Thanksgiving came up shortly after the birthday party, and my sister had Thanksgiving dinner at her house. I remember my niece texted me to see where I was because dad kept asking when we would be there. We arrived to my sister’s within the next 15 minutes and my dad didn’t stay long after that. This was the moment I knew my dad didn’t have much longer to be with us. This entire month he was more tired then usual.

December came quickly after the busy November. It was decided that we would have the entire family together for Christmas this year. A week or so before Christmas, everyone got together and brought a dish for Christmas dinner and the kids exchanged presents. Dad’s good friend came and took group pictures to celebrate this merry occasion. Christmas Day came and my sister’s family and my family had a quiet evening at my dad’s house. He seemed to be upbeat and in a good mood. Little did we know, he had a hard time breathing that morning but didn’t want to let us see he was in a lot of pain.

The next month would be the hardest month of my life.
January 2009 my dad was bed ridden and could only walk from the bed to the bathroom. We went through ups and downs that month and saw my dad deteriorate before our eyes, something I pray my children never have to witness. The family decided we did not want strangers in the house taking care of dad in his last days, so we created a calendar and rotated so someone was with him 24 hours a day. January 30, 2009 my sister and I were both there visiting with dad. He was only sleeping that day, but we talked and laughed right beside him remembering the good times. When we were headed home for the evening we told him we both loved him very much and would see him in the morning, he squeezed our hands to let us know he could hear us.

January 31, 2009 1:00 a.m I received a call from my aunt, “He has left to be with the Lord.” I cried but not because I missed him, but because he was no longer in pain. I was happy he didn’t have to suffer any longer.
 
I immediately knew that I wanted to help find a lung cancer CURE. I went to the internet and typed in lung cancer events in Dallas, TX and found DFW Walk for LUNGevity, now known as Breathe Deep DFW. From that moment on, I have been a volunteer for this amazing event. My dad might not be here to see the day that lung cancer is CURED, but I HOPE my family and myself get to see lifesaving research find a CURE.

My dad told me several times that month that he was ready to go to heaven. I know that my dad is up in heaven making jokes and hanging out with Elvis and the Beatles.
“Walk on, walk on with a hope in your heart
And you’ll never walk alone
You’ll never, ever walk alone”
- Elvis Presley
 
Life is fragile, be thankful for your blessings everyday.

Hug and kiss the ones you love and don’t be afraid to tell them you love them.

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My Dad is LIVING With Lung Cancer

June 14th, 2011 - by admin

by Andrea Scheff

My dad had a busy summer in 2006. Finally, after many years, he was building the pool he wanted, complete with an aqua shield dome over it so he can use it all year long.

Just for fun, he had a yearly chest xray in June, all was clear (or so we thought, turns out they missed a spot… oops).

In August, I was on bed rest after in-vitro. My dad was watching Channel 5 news and saw a segment on a non-surgical approach to enlarged prostate issues. He decided to see a new urologist.

As part of work up, the urologist ordered a pelvic and abdominal ct-scan.

Unexpectedly, a lung infiltrate showed up on the left lower lobe. My dad couldn’t have lung cancer, that was my mom’s job! He was her caretaker.

Things moved fast since we already had a medical team in place from my mom. Yup, my dad has lung cancer.  Shock can’t even describe it.

He underwent a wedge resection. Throughout the years little tumors popped up. Then by chance last year he was diagnosed with an indolent form of lymphoma. He is currently on Tarceva hoping to keep the beast at bay!

My dad’s motivation to keep going is his grandchildren, now age 4. They are truly the loves of his life.

And to answer the unasked, he quit smoking 30 years ago.

My dad is living proof that one can live with lung cancer!

There IS hope!

*BOTH of Andrea’s parents are lung cancer survivors.  Andrea is an advocate and long time member of LUNGevity’s Lung Cancer Support Community.

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