Archive for March, 2012

Jill Feldman

Here’s to the Cinderellas

March 28th, 2012 - by Jill Feldman

by Jill Feldman

This is my favorite time of the year.  Longer days, nice weather, and summer right around the corner, but what I really love about this time is March Madness, the NCAA College Men’s Basketball Tournament.

When it comes to sports, I’m competitive. I was a freshman at University of Kansas in 1988 when we won the NCAA tournament and there’s no experience like it. The excitement of college basketball and the tournament, which somehow gets lost in the NBA, is pure because it has nothing to do with ‘stardom,’ rather pure ‘heartdom.’ The desire and determination of every player in every game is so intense, like it’s the last game they will ever play — and for some it is. The single elimination format can lead to disappointing upsets for some, but unimaginable opportunities for others.

The magical moments, when miracles take place, remind us that anything can happen and any team can beat the odds and win. It helps to have a top recruit or player of the year, but it’s the team as a whole that wins — hard working players, determination, humility, teamwork, and a good coach. And if the stars are aligned, the beauty of March Madness comes alive when a Cinderella team advances ~ everyone loves to see the underdog win!

Lung cancer is a world of underdogs. I lost my mom, dad, aunt and two grandparents to lung cancer before I was 30 so in my experience the underdog never won. The only way to manage the pain I felt from the losses was to help change that. I got involved with LUNGevity in 2001 and it wasn’t long before I realized that even with lung cancer, anything could happen and we could help beat the odds. We (early LUNGevity board members) didn’t have money, connections to money, or connections to powerful people, yet within a few years we were the fastest growing charity in the country. Raising awareness and money for lung cancer research is an uphill battle, but we were successful because we created a team based on commitment, hard work, trust, determination, and heart.

We worked hard so we wouldn’t have to see another person we cared about receive a lung cancer diagnosis, but then the unthinkable happened; I became the patient.  In January 2009 I had surgery and was diagnosed with lung cancer. Despite my family history, knowledge, and experience, I was shocked. I wasn’t, and still am not, comfortable with the role reversal, but having knowledge and a strong team by my side gave me strength. I was the underdog, the 15% of lung cancers caught early, and I won that ‘game.’ I knew I was at high risk for a second lung cancer, and I was scared, but there was nothing I could do to lower my risk.

As my husband, Jason, my four kids and I slowly let our guard down and settled into our new normal, the wily cancer was quietly growing in another part of my lung, and my fear became a reality. I had a second lung cancer surgery this past September, and I have come to accept that I, unwillingly, qualify for the CMYC (Catch Me if You Can) lung cancer tournament. A lot like the NCAA basketball tournament, I know that each ‘game’ I play will require strategy and a strong, focused team. I am fortunate to have a committed and devoted team of doctors, nurses, family, friends, and an overwhelmingly supportive community. Now, moving forward it is full court press ~ we have to keep cancer in the back court!

I can’t control if or when I will get lung cancer again. And it is disheartening that lung cancer doesn’t have any proven therapies or preventative measures to lower risk of recurrence. Yet I can’t live my life in fear of another cancer. There is promising research out there into prevention, early detection and treatment of lung cancer, but it can’t be completed without a great deal more funding. It’s a helpless feeling, but I always tell my kids to focus on what they can do…So, what can I do?  I can build a ‘team’ for Breathe Deep Deerfield to help raise awareness and money to fund research that can save hundreds of thousands of lives, including my own. That is the only control I have over lung cancer. I can, I have, and I will continue to make a difference. Doing so helps me make sense of my crazy roller coaster ride with this insidious disease. I hope you will join my team. We may be the underdog now – but we’re aiming for the Cinderella story.

Breathe Deep Deerfield and other LUNGevity events across the country are about coming together as a ‘team’ to fight lung cancer. And for a disease that has been shadowed by a stigma of shame and blame, it’s about creating a community that understands and does not pass judgment — a community where those affected by lung cancer feel supported and have hope. Please walk with me at Breathe Deep Deerfield on May 6th or support another LUNGevity event near your hometown. We need to give lung cancer a voice – and hopefully, if we work together as a team, there will be more Cinderella stories!

As the exciting collegiate basketball season comes to a close, and Breathe Deep Deerfield gets closer, I will take a quote from the speech that Jimmy Valvano — head coach of the North Carolina State Wolfpack, whose underdog team won the 1983 NCAA Championship — delivered at the inaugural ESPY Awards in 1993. Given shortly before his death from cancer, Jimmy V said, “Don’t give up, don’t ever give up!”  I will never give up hope for myself and others affected by lung cancer.  And as I watch the Final Four this weekend, I won’t give up hope that my beloved Jayhawks will bring home another championship ~ ROCK CHALK JAYHAWK….GO KU!

Breathe Deep Deerfield Video

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For Us Everyday is 100%

March 22nd, 2012 - by admin

by Sara Ratzenberger

When I first met John, I knew that whoever he ended up with would be very lucky.  I was happy when he ended up with me.  I felt like the luckiest girl in the world.  We got married in August 2009.

A few months after our wedding our luck unfortunately started to change. I had a cough that started in December that wouldn’t  go away.  After being misdiagnosed with pneumonia, the cough lingered on.  Abnormal CT scans, bronchoscopy, CT guided needle biopsy, lots of blood work, all came back inconclusive.

So on July 23, 2010, I kissed my husband as they wheeled me off to do a lower right lobectomy/thoracotomy.  Five hours later I woke up to my teary eyed husband telling me how sorry he was, but that it was cancer.

I spent a week in the hospital.  John got a cot and stayed with me.  The day I was discharged, the doctor informed us that I was Stage IV Adenocarcinoma.  We were devastated; we had already read the statistics.  We went home and cried and talked.  John spent the next day doing research online and starting up a blog to keep family and friends updated.

He told me it didn’t matter what the statistics say, for us, every day was 100%.

He has continued that attitude for the past 17 months as we have endured more surgery, several “second” opinions, 3 different chemotherapy regimens, countless CT and PET scans, radiation for brain METs, and constant vomiting and other side effects on my part.  He is always at every chemo treatment, every doctor’s appointment, and every emotional breakdown.

John always took care of me, but since my diagnosis, he has stood strong to make sure our family of 2 survives this disease together.  I think about how I am not the only one who lost out on our dream to have children (I was 31 and John was 34 when I was diagnosed), the possibility of not getting to grow old together, and the hurt he deals with as well.

Each day is a new day.  Until recently, we used to work in the same office, which was wonderful.  He made sure I ate my lunch, got plenty of rest, drank my water, took my meds, kept anyone with a sniffle away from me, and made sure that I had a shoulder to lean on at anytime.

His hugs can make my day so much better.  His love is so strong; he keeps me fighting and keeps me positive!  We pray together every day for courage, strength, patience, and healing.  Without John as my partner, I know I would not be nearly as successful in this painful, difficult, emotional journey.

Since my diagnosis, John buys me flowers anytime he goes to the store by himself.  There are some weeks I get flowers several times as he picks up my prescriptions, goes to get me a food I am craving (as long as I am eating!), or just to do the regular shopping.

My husband truly is a lifesaver and I am very lucky to have him.

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Photo:  John, Sara and their puppy Greta

Sara and John have participated in the Lung Hill Run in Kansas City MO and in Breathe Deep Seattle WA.

Sara is a member of LUNGevity’s online Lung Cancer Support Community and will be attending this years 2012 LUNGevity HOPE Summit, a summit for lung cancer survivors.

Registration is now open for the LUNGevity Hope Summit.  Apply today.

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There IS Hope

March 19th, 2012 - by admin

By Cindy Gonzalez

I traveled to Washington DC in May of 2011 to the first HOPE Summit with the idea that I would be meeting with some old friends and have an opportunity to share some experiences with some new people with whom I have a strong common bond-Lung Cancer.  I happen to be a survivor, and there were other survivors there, and there were some who have been both caregivers and survivors!

All of these people CARE about lung cancer and want to do something to make people aware of the inequities in funding and the advances that are being made.  LUNGevity wants to make people aware that this is a survivable disease, and that you can lead an active and healthy life post lung-cancer.

During this wonderful weekend, I found that I share so many common feelings and experiences with all of the others in attendance.  We went to dinner-it was upbeat and lively-with no one ever at a loss for words despite the fact that many of us had never been in the same room together.  We shared some cancer experiences, of course, but we also talked about all kinds of things-our families, our lives, and our hopes for healthy lives going forward.

The next day we spent in our meeting-we formally shared our experiences with each other and really talked about what might be meaningful for a HOPE Summit in 2012.  Again, there were a lot of conversations and really listening to each other because we share common experiences.   There were some tears, laughs, and a lot of straightforward talk about issues, accomplishments, and all of the other things that survivors wonder if everybody else in their shoes is experiencing.

We took a bus together in the evening to attend a fundraiser for LUNGevity – again lots of great conversations and more opportunity to spend time with people who “get it.”  LUNGevity wants a world where no one dies of lung cancer-how great would that be?

I left for home the next day confident that LUNGevity can make a difference-it was an inspiring weekend.  The 2012 HOPE Summit will be a ‘must attend’ event for me.  I hope to see you there too.

Cindy is an 8 year survivor of lung cancer.  She joined LUNGevity’s online Lung Cancer Support Community in 2003 and gives back by volunteering as an online moderator, a LifeLine Support Partner to newly diagnosed patients and uses her story to empower others and raise awareness about lung cancer.

Registration to attend the 2012 LUNGevity Hope Summit is now open to the public!  We will feature some incredible speakers and sessions and space is limited so register quickly.  For those applicants needing travel assistance to Washington DC, we will also offer a limited number of travel scholarships.

Apply today for this incredible one of a kind summit for lung cancer survivors.

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A Caregiver’s Commitment

March 19th, 2012 - by admin

by

Jeanine Goldsmith

My cousin Stephanie Jenkins defines an incredible caregiver.

She participated in the Breath Deep DC walk this past November with her mother Lydia who is a lung cancer survivor.

As a caregiver, Stephanie’s unconditional support, love, and commitment is to the well-being of her family.  When Stephanie’s mother was diagnosed with stage IV lung cancer in November 2010, she didn’t think twice and moved her family, which includes three children between the age of 5 and 11 from Georgia to Maryland to be by her mother’s side.

Due to her mother’s illness, Stephanie also had to assume the caregiver role for her father who suffers from Multiple Sclerosis.    For over a year, Stephanie has had to sacrifice her personal life to serve has primary caregiver.  She had to sell her home in Atlanta and quit her job, all while raising her children by herself and caring for her parents.  Because Stephanie is a full time caregiver for both her parents, there is a major financial strain on the family.  All of these factors would put a strain even on the strongest of individuals.  Despite these obstacles, Stephanie continues to be determined to find ways to make things work somehow, someway.

Even though she knows why these sacrifices were necessary, I know it must be hard to deal with the fact that the independence you once had has been stripped from you and the life you once had is put on hold indefinitely.  I do the best I can to constantly remind Stephanie that her sacrifices are not done in vain but of course it is hard to look beyond the present chaos and see the bigger picture.

Currently, her mother is beginning a new treatment plan and is still trying to get her strength back.  I can only image how hard this whole situation has been on Stephanie and it breaks my heart to see her struggle to make ends meet.  Regardless, she continues to do what is necessary for her family and has never lost sight of the importance of that.

I admire my cousin for living up to what it truly means to love selflessly and unconditionally.

Thank you, Stephanie, for being an incredible caregiver!

If you are a lung cancer caregiver in need of resources or support, please visit LUNGevity’s online lung cancer Caregiver Resource Center.

Because of the lack of resources available specifically to lung cancer caregivers, many feel isolated and lack supportive people around them. Here at the CRC, caregivers can gain knowledge, learn care giving tips, get support from others and obtain hope.

The CRC is a dedicated place where caregivers can access an online community 24 hours a day with peer to peer support and advice from others who have been in their shoes. Caregivers can find information, tools and resources to effectively carry out the caregiver role.

The CRC will arm caregivers with information on what to expect after a lung cancer diagnosis; what questions to ask; how to help the patient; ways to take care of themselves and resources available.

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This One’s for You Dad

March 16th, 2012 - by admin

by Beth Westbrook

Many folks have a special memory of their dad and I am one of them.

We shared a love of Michigan State University athletics.  After a game, it was a race to see who would call the other first and recap the highlights.  Sometimes we just commiserated about the loss.

In 2006, when my dad was diagnosed with lung cancer, MSU sports became front and center when he wanted to put the cancer on the sidelines.  My dad never gave up on Michigan State (even when we knew it was a losing season) and he never gave up thinking he would beat his disease.  As the end was nearing, he grabbed my hand and asked me to fight for him and all the others who would have to live with lung cancer.  Now it is my turn to give it my all and not give up until no one else has to die from my opponent – lung cancer.

Make it a Slam Dunk – Stop Lung Cancer Now gives me an chance to root for Michigan State University this year and make a difference in the race to raise as much money as possible to support more of the promising research on the horizon.  If you have a favorite team in the Big Ten – give $10 today to support this campaign.

Whether you choose to join my team, or create one of your own, this is an opportunity to take an athletic competition and race the clock to win another championship – $25,000 for lung cancer research!

This one’s for you, Dad.  And for all us who want to end lung cancer now.

Join Beth’s team or start one of your own!

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Beth Westbrook is the Vice President of Development for LUNGevity Foundation. She has ten years of fundraising experience, most of which was accomplished in cancer related organizations, including Children’s Hospital of Pittsburgh, Gilda’s Club New York City and, most recently, the Prevent Cancer Foundation.

In addition to her years of fundraising Beth brings a personal passion to the cause. In 2001, after a courageous two and a half year battle, her oldest daughter Katie died of cancer at the age of fifteen. Two years later her husband, Andy Starnes, fought and won his battle with prostate cancer. When Beth‘s dad, Harvey Walker, passed away from lung cancer last Christmas, Beth realized that this was the arena she needed to be in. It was here at LUNGevity Foundation where she needed to put her energy, expertise and resources.

Beth has become an outspoken advocate for pediatric cancer research, palliative care, and stem cell research. She has been the opening speaker at Duke University and Georgetown University conferences as well as testifying before several Subcommittee hearings in Congress on issues of pediatric cancer research and stem cell research.

A graduate of Michigan State University with a degree in Public Resource Management, Beth also obtained her certification to teach Special Education from Central Missouri State University.

Beth, mother of three and step-mother of two, currently lives in Falls Church, VA.

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