Archive for the ‘Events’ Category

Jill Feldman

Finding the Silver Linings

April 10th, 2013 - by Jill Feldman

I have always wondered why people refer to their cancer diagnosis as a gift. Gifts are supposed to be exciting, fun and come from love. If being diagnosed with lung cancer was a gift, I would have returned it a long time ago!

But, I am a believer in silver linings; finding the positive in a situation no matter how unpleasant, difficult or even painful it may be. I know it’s easier said than done, but after losing my parents and other loved ones to lung cancer at a young age, I learned that it was my choice about how I respond to and handle the inevitable adversity we face in life.

I have chosen to find the silver linings. Finding the silver lining (which isn’t always easy!) provides balance and perspective during tough times. The ability to find something positive among the negative is empowering, and to find meaning in tragedy helps give both physical and emotional suffering a purpose. That purpose, and meaning, gives me a reason to keep going, to believe, to have hope.

Over the years I’ve learned that silver linings can be as small as your first walk to the corner after surgery or as big as being told you’re cancer-free.  I’ve learned that silver linings don’t take away pain, sadness or isolation, but they do help lessen the blow at times. Most importantly, I have learned that finding the silver lining is a choice ~ sometimes it’s hard to find, but it’s there if you look hard enough.

In the very large dark cloud of lung cancer that has tormented me for 30 years I have found several silver linings. Below are just a few:

 

  • Inexplicable tragedy can create an opportunity to take anger and sadness and turn it into positive change. For the past 11 years LUNGevity has been a vehicle to redirect my negative feelings into action, which has helped me reconcile with losing so many people I loved to lung cancer. It also helped me because my involvement with LUNGevity armed me with the weapons (knowledge, friendships and relationships with doctors and nurses) I needed to face my own lung cancer diagnosis with courage and not fear.
  • Ten years ago lung cancer was the invisible disease. That is no longer the case, and I am honored that I have had the opportunity to play a critical role in the growth of LUNGevity and the fight against lung cancer. There have been more advancements in lung cancer research in the past 7 years than the 25 years prior. I have options that mom, dad and so many others didn’t like targeted therapy and focused radiation; these are major silver linings in a disease previously associated with very little hope.
  • I have developed lifelong friendships and relationships with people I would have never met if it weren’t for lung cancer. Friends who understand a part of me that no one else does. Friends that I can’t imagine not being in my life.
  • I have a story that matters. A story of purpose that involves all the people who have touched my life and whose lives I have touched. There is both good and bad woven into my story and sometimes it feels like the bad plays a major role, but this quote says it all, “Life is like photography, we use the negative to develop.” I do not know how my story will continue to develop, but it’s a story I am proud to tell.
  • It takes a village  The far-reaching unconditional support my family has received from our small community has been touching and humbling; from the sheer number of people who want to help to the unbelievable measures many have gone to support us.

 

The silver lining in my community reaches far beyond me personally. I am still in awe of the teenagers at Deerfield High School. The awareness and funds for research that they raised in just three weeks is mind blowing.  I’m not sure they really understand that their efforts will have an impact on those affected by lung cancer for years to come. And last year our small community of 18,000 people attracted over 1,300 people and raised more than $140,000 for Breathe Deep Deerfield (a fun-run & walk) ~ something cities with millions of people have never done. The overwhelming community support gives me strength and hope.

I am excited that we have expanded the reach of our event across the northern suburbs of Chicago to create Breathe Deep North Shore. I can only imagine the impact we can have if the surrounding communities join in the fight against lung cancer.  Margaret Mead once said, “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.”

We are that small group of thoughtful, committed citizens and we can change the world of lung cancer.  Please join me at Breathe Deep North Shore on April 28th at Deerfield High School.  To register or donate visit www.lungevity.org/northshore.

Of course not everyone believes there is a silver lining in their cancer experience and that’s ok.  No matter where I am in my cancer journey, I will continue to find the silver lining.  Why?  Because it’s beautiful and it gives me hope ~ no cancer, pain or suffering can take that away!

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An Attitude of Gratitude

February 20th, 2013 - by admin

By Sue Bersh

“The ship of my life may or may not be sailing on calm and amiable seas. The challenging days of my existence may or may not be bright and promising. Stormy or sunny days, glorious or lonely nights, I maintain an attitude of gratitude. If I insist on being pessimistic, there is always tomorrow. Today I am blessed.” ― Maya Angelou

 If I had to sum myself up in one sentence it would be: I AM GRATEFUL.

There is nothing I am more grateful for than my husband and three incredible sons – each is a dream come true. My gratitude list is a long one – so many people and experiences that have made me who I am.  I have learned that even out of sadness and hurt can come blessings.

When I was 15 years old, my Grandma Harriet died of lung cancer. My twin brother and I were her only grandchildren. We spent lots of quality time with her, and she adored us. Her life ended much too early, but to this day I feel extremely connected to her, and I am grateful.

When I was a sophomore in high school, my closest friend told me she didn’t want to be my friend anymore, and I was heartbroken. A few months later I found a new group of friends who have remained my friends for life, including my friend Elyse. Out of heartbreak came lifelong friends, and I was grateful!

Seven years ago Elyse was diagnosed with lung cancer. I intimately shared in her illness and treatment and watched her hopelessly fight a disease with a 15% survival rate (not much better than when my grandma died 30 years earlier). I don’t think I will ever be able to fully share what this experience was like, but suffice to say that I was changed forever by it. And although it was devastating to watch, I am grateful for what we shared, which equated to a lifetime of love and friendship in the 2-1/2 years that Elyse battled this insidious disease.

Call it fate or karma – whatever it is – I truly believe that all of our experiences, big and small, and our relationships build on each other to put us on our destined path with the people we are meant to be with. Hopefully this path will lead us to doing good and living a life true to ourselves.

I have found my path in my involvement with LUNGevity Foundation. I am proud to be a board member, and last year I organized my first Breathe Deep fundraising event (with the help of many good friends and LUNGevity supporters) in the community where I grew up and still live today, Deerfield, IL.  Over 1,300 people participated last May, and we raised an unbelievable $140,000. We engaged a community in an important cause. A few months later, Deerfield High School chose LUNGevity as the beneficiary of its annual School Chest fundraiser. These extraordinary kids raised over $135,000 in three weeks to fund lung cancer research, and they inspired many, many people to care about lung cancer. I’m not sure any LUNGevity experience will top what I was fortunate enough to share with those remarkable teenagers. I am eternally grateful!

As we plan our next event, Breathe Deep North Shore, I am grateful for a community that has opened its arms to LUNGevity. They have put the stigma aside and truly understand that lung cancer is a fight that needs to be everyone’s. Lung cancer takes more lives than breast, prostate and colon cancers combined; it is destined to touch us all. I have never been more passionate about anything in my life than this cause.

 I am particularly grateful for the friends I have made on this journey, especially my friend Jill. This 43-year old, non-smoking mom of four is the new face of lung cancer. I love her and admire all that she does to advocate for herself, her family, and this cause. Jill, along with my friends Jerry, Lynda, Mary, Patti, Heather, Tracy, Barb, and others battling this disease, are the reasons I am in this fight for the long haul. They need treatment options, and they and their families deserve hope.

We all should celebrate life, especially when faced with challenges and loss. We need to be passionate about what we believe in and love hard because every day and every person in our lives truly is a gift. We need to find our destined path and make a difference in others’ lives. We should give of ourselves in a way that fulfills us and BE GRATEFUL for the things that matter most.

I am grateful to have found LUNGevity. It has helped me heal and find meaning in a terrible loss. Join me on my journey and maybe it will become yours too (or at least inspire you to find your own). If you live in the Chicago area, join us for Breathe Deep North Shore, a 5K fun run, one-mile walk and balloon launch on April 28th at Deerfield High School. Join my team, Elyse’s Legacy, Jill’s Team, Just Breathe, another team, or start your own. Register or donate today, and share in a day of meaning and hope.

WE can make a difference in the fight against lung cancer.

 

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Saving Grannies from Lung Cancer

April 23rd, 2012 - by admin

Tammy, Alexis and WandaSeven and a half year old Alexis Johnson’s family wants to save other grannies from lung cancer.

That’s why she’s the top fundraiser every year in her family’s event, Breathe Deep Kankakee.

Alexis’ grandmother, Wanda White, was diagnosed with lung cancer in 2009.  Wanda, along with her daughter, Tammy Johnson, thought an event to raise awareness was a good idea and she wanted people to know that smoking wasn’t the only cause for lung cancer.  Wanda had worked for 25 years in dry cleaning and she wanted people to know that anyone, regardless of smoking history, could develop lung cancer too.  There needed to be more research into the disease so the family set out to make a difference in their community!

Alexis’ mom Tammy and her grandmother Wanda began their first event, a walked called Breathe Deep Kankakee in August of 2009, and later a bowling event every November called Spare a Life Strike out Lung Cancer.  Alexis and her grandmother were always the top two fundraisers!

The family had never participated in events before finding LUNGevity.  Through LUNGevity they were able to raise awareness in their community and honor Wanda in her fight against the disease.  It was very hard for Alexis and her family to watch what Wanda had to endure and they wanted to do whatever they could to educate others about the disease, the warning signs, the importance of early detection and that research into early detection and more treatments could spare a life.

Wanda White passed away July 21, 2011.  Her family continues to fight in her honor raising thousands of dollars thru both events.

“I think everyone should attend a Breathe Deep event in their area because it’s an opportunity to get accurate information on lung cancer and because every dollar gets us closer to ending lung cancer,” said Tammy Johnson.

It’s also an opportunity to remember those we’ve lost to the disease.  It’s also an occasion to honor survivors and show that there IS hope and people do survive and with increase funding for research even more people will survive this disease.

Alexis and her family hope this year’s event is the best event ever in memory of Wanda. Even though Wanda can’t physically be there this year, they know that she will be there in spirit, cheering them on.

For more information on Breathe Deep Kankakee and Spare a Life Strike out Lung Cancer, or to start your own event with LUNGevity, please visit our website www.LUNGevity.org

About LUNGevity Foundation

The mission of LUNGevity Foundation is to have a meaningful impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.

Through the support of critical research into the early detection and successful treatment of lung cancer, as well as providing information, resources and a community to patients and caregivers, LUNGevity is creating and sharing hope for cures, treatments and enhanced quality of life for lung cancer patients.

LUNGevity seeks to inspire the nation to commit to ending lung cancer.

For more information, please visit www.LUNGevity.org

About Lung Cancer

• 1 in 14 Americans is diagnosed with lung cancer in their lifetime

• Lung cancer is the leading cause of cancer death, regardless of gender or ethnicity

• Lung cancer kills almost twice as many women as breast cancer and more than three times as many men as prostate cancer

• About 55% of all new lung cancer diagnoses are among people who have never smoked or are former smokers

• Only 16% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it’s caught before it spreads, the chance for 5-year survival improves to 52%

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Jill Feldman

Here’s to the Cinderellas

March 28th, 2012 - by Jill Feldman

by Jill Feldman

This is my favorite time of the year.  Longer days, nice weather, and summer right around the corner, but what I really love about this time is March Madness, the NCAA College Men’s Basketball Tournament.

When it comes to sports, I’m competitive. I was a freshman at University of Kansas in 1988 when we won the NCAA tournament and there’s no experience like it. The excitement of college basketball and the tournament, which somehow gets lost in the NBA, is pure because it has nothing to do with ‘stardom,’ rather pure ‘heartdom.’ The desire and determination of every player in every game is so intense, like it’s the last game they will ever play — and for some it is. The single elimination format can lead to disappointing upsets for some, but unimaginable opportunities for others.

The magical moments, when miracles take place, remind us that anything can happen and any team can beat the odds and win. It helps to have a top recruit or player of the year, but it’s the team as a whole that wins — hard working players, determination, humility, teamwork, and a good coach. And if the stars are aligned, the beauty of March Madness comes alive when a Cinderella team advances ~ everyone loves to see the underdog win!

Lung cancer is a world of underdogs. I lost my mom, dad, aunt and two grandparents to lung cancer before I was 30 so in my experience the underdog never won. The only way to manage the pain I felt from the losses was to help change that. I got involved with LUNGevity in 2001 and it wasn’t long before I realized that even with lung cancer, anything could happen and we could help beat the odds. We (early LUNGevity board members) didn’t have money, connections to money, or connections to powerful people, yet within a few years we were the fastest growing charity in the country. Raising awareness and money for lung cancer research is an uphill battle, but we were successful because we created a team based on commitment, hard work, trust, determination, and heart.

We worked hard so we wouldn’t have to see another person we cared about receive a lung cancer diagnosis, but then the unthinkable happened; I became the patient.  In January 2009 I had surgery and was diagnosed with lung cancer. Despite my family history, knowledge, and experience, I was shocked. I wasn’t, and still am not, comfortable with the role reversal, but having knowledge and a strong team by my side gave me strength. I was the underdog, the 15% of lung cancers caught early, and I won that ‘game.’ I knew I was at high risk for a second lung cancer, and I was scared, but there was nothing I could do to lower my risk.

As my husband, Jason, my four kids and I slowly let our guard down and settled into our new normal, the wily cancer was quietly growing in another part of my lung, and my fear became a reality. I had a second lung cancer surgery this past September, and I have come to accept that I, unwillingly, qualify for the CMYC (Catch Me if You Can) lung cancer tournament. A lot like the NCAA basketball tournament, I know that each ‘game’ I play will require strategy and a strong, focused team. I am fortunate to have a committed and devoted team of doctors, nurses, family, friends, and an overwhelmingly supportive community. Now, moving forward it is full court press ~ we have to keep cancer in the back court!

I can’t control if or when I will get lung cancer again. And it is disheartening that lung cancer doesn’t have any proven therapies or preventative measures to lower risk of recurrence. Yet I can’t live my life in fear of another cancer. There is promising research out there into prevention, early detection and treatment of lung cancer, but it can’t be completed without a great deal more funding. It’s a helpless feeling, but I always tell my kids to focus on what they can do…So, what can I do?  I can build a ‘team’ for Breathe Deep Deerfield to help raise awareness and money to fund research that can save hundreds of thousands of lives, including my own. That is the only control I have over lung cancer. I can, I have, and I will continue to make a difference. Doing so helps me make sense of my crazy roller coaster ride with this insidious disease. I hope you will join my team. We may be the underdog now – but we’re aiming for the Cinderella story.

Breathe Deep Deerfield and other LUNGevity events across the country are about coming together as a ‘team’ to fight lung cancer. And for a disease that has been shadowed by a stigma of shame and blame, it’s about creating a community that understands and does not pass judgment — a community where those affected by lung cancer feel supported and have hope. Please walk with me at Breathe Deep Deerfield on May 6th or support another LUNGevity event near your hometown. We need to give lung cancer a voice – and hopefully, if we work together as a team, there will be more Cinderella stories!

As the exciting collegiate basketball season comes to a close, and Breathe Deep Deerfield gets closer, I will take a quote from the speech that Jimmy Valvano — head coach of the North Carolina State Wolfpack, whose underdog team won the 1983 NCAA Championship — delivered at the inaugural ESPY Awards in 1993. Given shortly before his death from cancer, Jimmy V said, “Don’t give up, don’t ever give up!”  I will never give up hope for myself and others affected by lung cancer.  And as I watch the Final Four this weekend, I won’t give up hope that my beloved Jayhawks will bring home another championship ~ ROCK CHALK JAYHAWK….GO KU!

Breathe Deep Deerfield Video

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This One’s for You Dad

March 16th, 2012 - by admin

by Beth Westbrook

Many folks have a special memory of their dad and I am one of them.

We shared a love of Michigan State University athletics.  After a game, it was a race to see who would call the other first and recap the highlights.  Sometimes we just commiserated about the loss.

In 2006, when my dad was diagnosed with lung cancer, MSU sports became front and center when he wanted to put the cancer on the sidelines.  My dad never gave up on Michigan State (even when we knew it was a losing season) and he never gave up thinking he would beat his disease.  As the end was nearing, he grabbed my hand and asked me to fight for him and all the others who would have to live with lung cancer.  Now it is my turn to give it my all and not give up until no one else has to die from my opponent – lung cancer.

Make it a Slam Dunk – Stop Lung Cancer Now gives me an chance to root for Michigan State University this year and make a difference in the race to raise as much money as possible to support more of the promising research on the horizon.  If you have a favorite team in the Big Ten – give $10 today to support this campaign.

Whether you choose to join my team, or create one of your own, this is an opportunity to take an athletic competition and race the clock to win another championship – $25,000 for lung cancer research!

This one’s for you, Dad.  And for all us who want to end lung cancer now.

Join Beth’s team or start one of your own!

_____________________________________

Beth Westbrook is the Vice President of Development for LUNGevity Foundation. She has ten years of fundraising experience, most of which was accomplished in cancer related organizations, including Children’s Hospital of Pittsburgh, Gilda’s Club New York City and, most recently, the Prevent Cancer Foundation.

In addition to her years of fundraising Beth brings a personal passion to the cause. In 2001, after a courageous two and a half year battle, her oldest daughter Katie died of cancer at the age of fifteen. Two years later her husband, Andy Starnes, fought and won his battle with prostate cancer. When Beth‘s dad, Harvey Walker, passed away from lung cancer last Christmas, Beth realized that this was the arena she needed to be in. It was here at LUNGevity Foundation where she needed to put her energy, expertise and resources.

Beth has become an outspoken advocate for pediatric cancer research, palliative care, and stem cell research. She has been the opening speaker at Duke University and Georgetown University conferences as well as testifying before several Subcommittee hearings in Congress on issues of pediatric cancer research and stem cell research.

A graduate of Michigan State University with a degree in Public Resource Management, Beth also obtained her certification to teach Special Education from Central Missouri State University.

Beth, mother of three and step-mother of two, currently lives in Falls Church, VA.

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