Archive for the ‘Events’ Category

Saving Grannies from Lung Cancer

April 23rd, 2012 - by admin

Tammy, Alexis and WandaSeven and a half year old Alexis Johnson’s family wants to save other grannies from lung cancer.

That’s why she’s the top fundraiser every year in her family’s event, Breathe Deep Kankakee.

Alexis’ grandmother, Wanda White, was diagnosed with lung cancer in 2009.  Wanda, along with her daughter, Tammy Johnson, thought an event to raise awareness was a good idea and she wanted people to know that smoking wasn’t the only cause for lung cancer.  Wanda had worked for 25 years in dry cleaning and she wanted people to know that anyone, regardless of smoking history, could develop lung cancer too.  There needed to be more research into the disease so the family set out to make a difference in their community!

Alexis’ mom Tammy and her grandmother Wanda began their first event, a walked called Breathe Deep Kankakee in August of 2009, and later a bowling event every November called Spare a Life Strike out Lung Cancer.  Alexis and her grandmother were always the top two fundraisers!

The family had never participated in events before finding LUNGevity.  Through LUNGevity they were able to raise awareness in their community and honor Wanda in her fight against the disease.  It was very hard for Alexis and her family to watch what Wanda had to endure and they wanted to do whatever they could to educate others about the disease, the warning signs, the importance of early detection and that research into early detection and more treatments could spare a life.

Wanda White passed away July 21, 2011.  Her family continues to fight in her honor raising thousands of dollars thru both events.

“I think everyone should attend a Breathe Deep event in their area because it’s an opportunity to get accurate information on lung cancer and because every dollar gets us closer to ending lung cancer,” said Tammy Johnson.

It’s also an opportunity to remember those we’ve lost to the disease.  It’s also an occasion to honor survivors and show that there IS hope and people do survive and with increase funding for research even more people will survive this disease.

Alexis and her family hope this year’s event is the best event ever in memory of Wanda. Even though Wanda can’t physically be there this year, they know that she will be there in spirit, cheering them on.

For more information on Breathe Deep Kankakee and Spare a Life Strike out Lung Cancer, or to start your own event with LUNGevity, please visit our website www.LUNGevity.org

About LUNGevity Foundation

The mission of LUNGevity Foundation is to have a meaningful impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.

Through the support of critical research into the early detection and successful treatment of lung cancer, as well as providing information, resources and a community to patients and caregivers, LUNGevity is creating and sharing hope for cures, treatments and enhanced quality of life for lung cancer patients.

LUNGevity seeks to inspire the nation to commit to ending lung cancer.

For more information, please visit www.LUNGevity.org

About Lung Cancer

• 1 in 14 Americans is diagnosed with lung cancer in their lifetime

• Lung cancer is the leading cause of cancer death, regardless of gender or ethnicity

• Lung cancer kills almost twice as many women as breast cancer and more than three times as many men as prostate cancer

• About 55% of all new lung cancer diagnoses are among people who have never smoked or are former smokers

• Only 16% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it’s caught before it spreads, the chance for 5-year survival improves to 52%

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Jill Feldman

Here’s to the Cinderellas

March 28th, 2012 - by Jill Feldman

by Jill Feldman

This is my favorite time of the year.  Longer days, nice weather, and summer right around the corner, but what I really love about this time is March Madness, the NCAA College Men’s Basketball Tournament.

When it comes to sports, I’m competitive. I was a freshman at University of Kansas in 1988 when we won the NCAA tournament and there’s no experience like it. The excitement of college basketball and the tournament, which somehow gets lost in the NBA, is pure because it has nothing to do with ‘stardom,’ rather pure ‘heartdom.’ The desire and determination of every player in every game is so intense, like it’s the last game they will ever play — and for some it is. The single elimination format can lead to disappointing upsets for some, but unimaginable opportunities for others.

The magical moments, when miracles take place, remind us that anything can happen and any team can beat the odds and win. It helps to have a top recruit or player of the year, but it’s the team as a whole that wins — hard working players, determination, humility, teamwork, and a good coach. And if the stars are aligned, the beauty of March Madness comes alive when a Cinderella team advances ~ everyone loves to see the underdog win!

Lung cancer is a world of underdogs. I lost my mom, dad, aunt and two grandparents to lung cancer before I was 30 so in my experience the underdog never won. The only way to manage the pain I felt from the losses was to help change that. I got involved with LUNGevity in 2001 and it wasn’t long before I realized that even with lung cancer, anything could happen and we could help beat the odds. We (early LUNGevity board members) didn’t have money, connections to money, or connections to powerful people, yet within a few years we were the fastest growing charity in the country. Raising awareness and money for lung cancer research is an uphill battle, but we were successful because we created a team based on commitment, hard work, trust, determination, and heart.

We worked hard so we wouldn’t have to see another person we cared about receive a lung cancer diagnosis, but then the unthinkable happened; I became the patient.  In January 2009 I had surgery and was diagnosed with lung cancer. Despite my family history, knowledge, and experience, I was shocked. I wasn’t, and still am not, comfortable with the role reversal, but having knowledge and a strong team by my side gave me strength. I was the underdog, the 15% of lung cancers caught early, and I won that ‘game.’ I knew I was at high risk for a second lung cancer, and I was scared, but there was nothing I could do to lower my risk.

As my husband, Jason, my four kids and I slowly let our guard down and settled into our new normal, the wily cancer was quietly growing in another part of my lung, and my fear became a reality. I had a second lung cancer surgery this past September, and I have come to accept that I, unwillingly, qualify for the CMYC (Catch Me if You Can) lung cancer tournament. A lot like the NCAA basketball tournament, I know that each ‘game’ I play will require strategy and a strong, focused team. I am fortunate to have a committed and devoted team of doctors, nurses, family, friends, and an overwhelmingly supportive community. Now, moving forward it is full court press ~ we have to keep cancer in the back court!

I can’t control if or when I will get lung cancer again. And it is disheartening that lung cancer doesn’t have any proven therapies or preventative measures to lower risk of recurrence. Yet I can’t live my life in fear of another cancer. There is promising research out there into prevention, early detection and treatment of lung cancer, but it can’t be completed without a great deal more funding. It’s a helpless feeling, but I always tell my kids to focus on what they can do…So, what can I do?  I can build a ‘team’ for Breathe Deep Deerfield to help raise awareness and money to fund research that can save hundreds of thousands of lives, including my own. That is the only control I have over lung cancer. I can, I have, and I will continue to make a difference. Doing so helps me make sense of my crazy roller coaster ride with this insidious disease. I hope you will join my team. We may be the underdog now – but we’re aiming for the Cinderella story.

Breathe Deep Deerfield and other LUNGevity events across the country are about coming together as a ‘team’ to fight lung cancer. And for a disease that has been shadowed by a stigma of shame and blame, it’s about creating a community that understands and does not pass judgment — a community where those affected by lung cancer feel supported and have hope. Please walk with me at Breathe Deep Deerfield on May 6th or support another LUNGevity event near your hometown. We need to give lung cancer a voice – and hopefully, if we work together as a team, there will be more Cinderella stories!

As the exciting collegiate basketball season comes to a close, and Breathe Deep Deerfield gets closer, I will take a quote from the speech that Jimmy Valvano — head coach of the North Carolina State Wolfpack, whose underdog team won the 1983 NCAA Championship — delivered at the inaugural ESPY Awards in 1993. Given shortly before his death from cancer, Jimmy V said, “Don’t give up, don’t ever give up!”  I will never give up hope for myself and others affected by lung cancer.  And as I watch the Final Four this weekend, I won’t give up hope that my beloved Jayhawks will bring home another championship ~ ROCK CHALK JAYHAWK….GO KU!

Breathe Deep Deerfield Video

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This One’s for You Dad

March 16th, 2012 - by admin

by Beth Westbrook

Many folks have a special memory of their dad and I am one of them.

We shared a love of Michigan State University athletics.  After a game, it was a race to see who would call the other first and recap the highlights.  Sometimes we just commiserated about the loss.

In 2006, when my dad was diagnosed with lung cancer, MSU sports became front and center when he wanted to put the cancer on the sidelines.  My dad never gave up on Michigan State (even when we knew it was a losing season) and he never gave up thinking he would beat his disease.  As the end was nearing, he grabbed my hand and asked me to fight for him and all the others who would have to live with lung cancer.  Now it is my turn to give it my all and not give up until no one else has to die from my opponent – lung cancer.

Make it a Slam Dunk – Stop Lung Cancer Now gives me an chance to root for Michigan State University this year and make a difference in the race to raise as much money as possible to support more of the promising research on the horizon.  If you have a favorite team in the Big Ten – give $10 today to support this campaign.

Whether you choose to join my team, or create one of your own, this is an opportunity to take an athletic competition and race the clock to win another championship – $25,000 for lung cancer research!

This one’s for you, Dad.  And for all us who want to end lung cancer now.

Join Beth’s team or start one of your own!

_____________________________________

Beth Westbrook is the Vice President of Development for LUNGevity Foundation. She has ten years of fundraising experience, most of which was accomplished in cancer related organizations, including Children’s Hospital of Pittsburgh, Gilda’s Club New York City and, most recently, the Prevent Cancer Foundation.

In addition to her years of fundraising Beth brings a personal passion to the cause. In 2001, after a courageous two and a half year battle, her oldest daughter Katie died of cancer at the age of fifteen. Two years later her husband, Andy Starnes, fought and won his battle with prostate cancer. When Beth‘s dad, Harvey Walker, passed away from lung cancer last Christmas, Beth realized that this was the arena she needed to be in. It was here at LUNGevity Foundation where she needed to put her energy, expertise and resources.

Beth has become an outspoken advocate for pediatric cancer research, palliative care, and stem cell research. She has been the opening speaker at Duke University and Georgetown University conferences as well as testifying before several Subcommittee hearings in Congress on issues of pediatric cancer research and stem cell research.

A graduate of Michigan State University with a degree in Public Resource Management, Beth also obtained her certification to teach Special Education from Central Missouri State University.

Beth, mother of three and step-mother of two, currently lives in Falls Church, VA.

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Why Lung Cancer is MY Fight

February 21st, 2012 - by admin

By Sue Bersh

I wrote about losing a best friend to lung cancer about a year ago for LUNGevity’s blog.  As I have become more and more active with LUNGevity, I have met many, many people whose lives have been touched by lung cancer. They are people who know lung cancer’s M.O.:  going undetected until it is in its late stages; having few options for treatment; being associated with the unfair stigma/blame that shadows this disease; taking lives quickly; and leaving people shocked that their options are few.  Lung cancer is ruthless.

I lost two people I love to lung cancer. I lost my Grandma Harriet when I was 16, and I lost my dear friend, Elyse (Bernstein) Keefe, 3-1/2 years ago when she was only 45. Both were huge losses in my life, but losing Elyse was what motivated me to take action.

Like a best friend should, I lived Elyse’s lung cancer with her. My heart broke when she was first diagnosed; when her cancer returned; on the day she asked her doctor how much time she had left; when she talked about all of the things she still wanted to do in her life; and countless times in between.  And there are no words to describe what I felt when I was holding her hand when she took her last breath. It was the single saddest moment of my life. Lung cancer showed no mercy to my sweet, loving and brave friend. Lung cancer took a second person that I loved — and changed me forever.

Elyse and I had volunteered once for LUNGevity.  We promised each other that when she got better we’d volunteer regularly. I have followed through on that for us both. I feel her with me in all that I do for LUNGevity. It’s the most meaningful way I can think of to honor her memory and keep her close. It’s also the only way I can think of to help ensure that others don’t suffer the way she did.

Viktor Frankl, a psychiatrist who spent many years in a concentration camp during World War II, wrote in Man’s Search for Meaning (a book Rabbi Paul Cohen recommend to me when Elyse was sick) that everything in life can be taken from you except one thing: your freedom to choose how you will respond to a situation. What determines our quality of life is how we relate to the realities of life: what kind of meaning we assign them and what kind of attitude we cling to about them.

I lost one of my closest friends to lung cancer. I stared lung cancer in the face with her and it was terrifying. But instead of being angry and sad (and I do have a few of those moments), I have chosen to honor her journey and her memory with a legacy of love and hope. This is the meaning I have found in the loss of someone I love. This is what I have chosen to cling to.

I am honored to be a LUNGevity Board member, and I am proud to be Event Coordinator of Breathe Deep Deerfield.  Through my work with LUNGevity, I now have many friends with lung cancer. For my Grandma Harriet & Elyse; for Jill Feldman, Jerry Sorkin and my other friends with lung cancer; and for the almost one quarter of a million people diagnosed with lung cancer last year — this is MY fight now.

I hope that most of you will never know lung cancer. But the odds are not in your favor. It is the number one cancer killer, and 1 in 14 people will be diagnosed with it in our lifetime. It is likely to touch your life in some way. Anyone can get lung cancer.

Please help LUNGevity fund research into the early detection and successful treatment of lung cancer. If you live in the Chicago area, join us for a day of meaning and hope on May 6th at Deerfield High School.  Walk, run, volunteer, launch a balloon — register or donate today for Breathe Deep Deerfield.

WE can make a difference in the fight against lung cancer.

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