Posts Tagged ‘faith’

Kenneth Lourie

My Team

March 26th, 2013 - by Kenneth Lourie

Not literally, of course. Nor am I the coach or the general manager. But I do feel like an owner, in that there are people that I invest in – again not literally, but definitely emotionally.

The people who express the kind of positivity and confidence and encouragement – and empathy and understanding quite honestly, of the demands and rigors physically, emotionally and spiritually of being a terminal cancer patient. Aside from my immediate family and inner circle of friends, co-workers, and fellow cancer patients with whom I’ve connected, I refer to all the people who have sent cards, letters, e-mails and general well-wishes offering their hope, prayers and confidence in yours truly surviving this ordeal.

Moreover, there are people I’ve met along the way: health care providers, therapists, newly diagnosed cancer patients, previously diagnosed cancer patients, individuals who don’t know me/don’t know my story; whose personality, perspective, enthusiasm and sincerity have empowered me, and who have exuded the kind of positive and uplifting spirit that fuels the passion that a stage IV lung cancer patient tends to lose as the fight for one’s own survival continues. To invoke a sports cliché: these are people who are good in the locker room/clubhouse.

These individuals are selfless, dedicated, motivated, caring, concerned, successful, can-do-type positive influences who optimize their optimism and bury their pessimism, especially around a terminal cancer patient. The last thing, the absolute last vibe that a terminal patient needs is negativity, depression, anxiety, worry and stress; internally and equally importantly: externally. I don’t need to feel or be influenced by or be in the presence of anybody – or anything, that intentionally or unintentionally (by their nature) brings me down or opens me up to self doubt, or doubt of any kind for that matter. I need to believe. And most importantly, I/we need to be infused with positivity. And I don’t mean Stepford Wives-type behavior (robotic, following a script, lacking in substance) either. I mean, the human touch, emotionally certainly and occasionally even physically. In summary, we need a connection, a feeling of togetherness and mutual awareness of the patient’s plight and a willingness to face it and dare I say, discuss it together in an intelligent, thoughtful and exuberant-type manner where the highs – in life and in any treatment protocol, are maximized and where the lows are minimized.

The up-and-down-and-all-around existence of a cancer patient who’s terminal is already as much negativity (which becomes almost endemic) as one can endure. Therefore, any more negativity from any source in any way/context might just push that patient over his or her emotional edge. An edge which might involve a metaphorical set of finger nails.

Who knows really, what the patient’s limitations are? We only know who, what, where and when circumstances exacerbate an already precarious position, a position certainly worth avoiding.

My team consists of individuals with attitudes that reflect this reality. It may not be for everybody. But it better be for the cancer patient. “I don’t know much, but I know that.” (Ben Affleck – out of context, from the movie “Good Will Hunting.”)

Who’s on your team in this fight against lung cancer?

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“This column is my life as one of the fortunate few; a lung cancer anomaly: a stage IV lung cancer patient who has outlived his doctor’s original prognosis; and I’m glad to share it. It seems to help me cope writing about it. Perhaps it will help you relate reading about it.”

Mr. Lourie’s columns can be found at www.connectionnewspapers.com. (key word, Lourie)

Read Kenneth Lourie’s 1st LUNGevity blog post & bio.

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Kenneth Lourie

Writing On!

November 13th, 2012 - by Kenneth Lourie

It was June ’09 when I published my first column in the Connection Newspapers about being diagnosed with cancer.

It was actually a column detailing the diagnostic steps I had taken during the first few months of the year attempting to identify the pain I had initially felt under my right-side rib cage in late December. Once that pain migrated from one side to the other, accompanied by difficulty inhaling and bending, my wife and I decided that a trip to the Emergency Room was warranted. I wasn’t in any distress, and it certainly wasn’t an emergency; nevertheless, it did seem the sensible thing to do.

During this diagnostic process (which took about two months), I continued to write and publish my regular weekly column as usual (not at all about cancer). Privately, however, I had been writing about this evolving situation ever since it began in the Emergency Room in December. Given all that the diagnostic process had involved, and the range of emotions I had experienced, I had ample feelings on which to write, eventually accumulating more than a handful of columns I have come to characterize as my “cancer columns.”

These columns remained unpublished until June. My feeling had been that once I published a column about such serious matters, how could I ever again fill my space with the mundane minutiae that had characterized much of its content the previous 10 years, award-winning though some of them had been, as voted on by members of the MDDC Press Association (Maryland/Delaware/D.C.) and the VPA (Virginia Press Association)? Besides, chemotherapy was set to begin in early March, so I just decided to simplify my life and submitted for publication more of the non-cancer columns which I had written during less complicated days. After all, as you regular readers know, if I can write about anything, I can write about my life, its relative interest notwithstanding; so I had a stack of unpublished columns ready to carry me for a few months until I felt better or different and decided to go public with my diagnosis, which eventually I did.

After I published that first column in June: “Dying to Find Out, Sort Of,” I just continued with the “cancer columns.” It seemed easy enough and I did have a bit of a story to tell/share. Although I had no idea or intention of using my space to chronicle the journey per se, of a terminal cancer patient attempting to survive the emotional, physical and spiritual toll such a diagnosis (stage IV lung cancer) and prognosis (“13-months to two years”) can have, apparently, that’s exactly what I’ve done. All I knew then was that writing about my experiences provided me a much-needed outlet. And for all I know now, writing so openly about my life as a cancer patient may have in fact extended that life; I have survived way beyond my oncologist’s initial prognosis.

And as I have continued to survive, I have continued to write about having cancer. Once I started (published that first column), I couldn’t stop (again, it was my life, so…). Three years later, nearly 150 columns have been published. Occasionally, I’ll get off the cancer train (if only it were that easy) and write a non-cancer column, but when your life is consumed by something (as much as I wish it weren’t and as hard as I try to prevent it), it’s sort of difficult to ignore.

Writing helps, for me. Part catharsis, part selfish, part greater good, but mostly because it brings me pleasure. And when your diagnosis is terminal, sometimes pleasure is hard to find.

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BIO: “I was diagnosed with stage IV non-small cell lung cancer in late Feb., 2009. Symptoms (a pain in my right side which migrated to my left side) first manifested on Dec. 31st, 2008. Over the next nearly three months, I was “Emergency-roomed” and X-Rayed, followed up with a Pulmonary doctor and re-X-Rayed, then CT-Scanned and sent to a Thoracic surgeon – had a P.E.T. Scan (which “Lit up like a Christmas Tree,” the doctor said), then ultimately to a hospital for a biopsy which confirmed the unfortunate diagnosis. At age 54 and a half, a life long non-smoker, with no immediate family history of cancer or even premature death (I know, every death is premature), I received a terminal diagnosis and a “13 months to two-year” prognosis and advised by my oncologist to “Take that vacation I’d always dreamed of.” I didn’t and I haven’t.
What I have be doing ever since is trying to live as normal a life as possible and writing about it, ‘it’ being my life as a terminal cancer patient, warts and all (euphemistically speaking; ‘warts’ have not been a side effect). Diagnosis to date, I have written and published nearly 180 columns on the subject, a subject with which I had very little previous experience and even less knowledge. My columns chronicle this journey (adventure hardly seems appropriate given its positive connotation) including all the ups and downs – and the “all-arounds,” too.
This column is my life as one of the fortunate few; a lung cancer anomaly: a stage IV lung cancer patient who has outlived his doctor’s original prognosis; and I’m glad to share it. It seems to help me cope writing about it. Perhaps it will help you relate reading about it.”

Please leave your comments below.  Mr. Lourie’s columns can be found at www.connectionnewspapers.com. (key word, Lourie)

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Celebrating 6 Years of LIFE

September 7th, 2012 - by admin

by Lois Green

I am a runner, and I was diagnosed with lung cancer in 2006.

I didn’t have any risk factors. I was relatively young and healthy, and by sheer luck at a company health fair I was encouraged to see a specialist for my asthma. The rest is history.

The year that followed my lung surgery was EPIC!!! The support from my friends, family, and colleagues was OVER THE TOP! The letters I received are treasures etched in my heart forever. I ran my next marathon 9 months after surgery with my daughter Tara at my side through every mile. We raised $20,000 for LLS. (Leukemia and Lymphoma Society) That was incredible!

But not everyone is as lucky as I was to have found their lung cancer in its earliest stage or to have the support from friends and family during their cancer experience.

Lung cancer impacts one in 14 Americans and kills more than breast, prostate, colorectal, and pancreatic cancers combined.
Currently, only 16% of people diagnosed with lung cancer survive 5 years post-diagnosis, a percentage significantly lower than that for each of these other cancers.
While colon, breast, and prostate cancers all have reliable early detection tests, lung cancer does not.
About 55% of all new lung cancer diagnoses are among people who are never-smokers or former smokers. I am a never-smoker.
Lung cancer claims approximately 160,000 lives per year.
Fewer than $2,000 of federal cancer research dollars are spent for each lung cancer death, compared with about $25,000 for each breast cancer death and $11,000 for each prostate cancer death.

I feel like the media focuses on a variety of cancers but often overlook lung cancer because of the stigma associated with the disease. Many people think that smokers should know better and expect related health problems when they smoke. As a nation, we don’t give enough attention to lung cancer treatment and prevention.

And the public should know that never-smokers get lung cancer, too. Anyone with lungs can get it, like me.

Earlier this year I attended a friend’s dinner party where I was among several doctors and their spouses. We had finished dinner, so I excused myself from the table to indulge in the variety of desserts only to discover on my return that I was the topic of conversation for being a lung cancer survivor and a runner. The doctor sitting next to me turned and said, “You’re a lung cancer survivor? That is amazing because when most people are diagnosed with lung cancer, it is already too late.” That moment raises an emotion in me, and I am reminded of how lucky I am.

On May 4, 2012, I attended the annual HOPE Summit for LUNGevity in Washington D.C. On arrival we met with everyone we bonded with at last year’s Summit, and it was even more exciting when we learned that the number of attending lung cancer survivors tripled this year! The HOPE Summit agenda is always packed with fascinating people and events. The second morning of the summit, I entered the conference room and “HOPEtastic” was everywhere. Survivors who have written books had brought copies to share. Keynote speakers shared their incredible stories, research doctors educated us on many topics, and media were there to video personal testimonies.

Randall Broad, author and stage III lung cancer survivor, reminded us all that “It’s An Extraordinary Life…Don’t Miss It.” There wasn’t a dry eye in the room when Randy told his story.

Jorge Gonzalez was 47 when he was diagnosed with stage III lung cancer on May 28, 2011. He was young, relatively healthy, and a non-smoker without risk factors. He is married with two daughters and treasures the time with his family. Jorge says, “The biggest fear I had when I was diagnosed was over my family. I didn’t know what to do, so I made arrangements. I wanted to make sure things were taken care of in case I didn’t survive this.” But he did. “Every day above ground is a good day.”

Then there was Sara Ratzenberger, who arrived in a wheelchair with an IV and nasal cannula for added oxygen. Nothing was going to stop this brave little girl, young lady, from attending the HOPE Summit. Sara came with every ounce of determination she had. She is a stage IV, 1.5-year Survivor. When I see Sara on Facebook, she is pure Sunshine and lives every day to the fullest. Sara is pretty, with blonde hair, blue hair (for LUNGevity), or sometimes very little hair. We all love Sara. When I am less motivated to run, I peek in on Sara and I have sudden purpose. Sara recently had a second thoracotomy.

I recall the tender moment after my surgery, when I could barely open my eyes. My dad (who was a smoker) came in my room alone and placed his hand on mine over the IV and said, “I hope I didn’t do this to you.” “No, Dad, you didn’t.”

People!! This is NOT a smoker’s disease. Lung cancer does not discriminate.
I cannot fathom a second thoracotomy. I had a pity party when my ICU nurse assisted me out of bed for my first walk on the metal walker. With lines/tubes extended from my neck, my arm, my waist, and my back, I sobbed during those first steps until my nurse, ”Mary,” said “Lois, you will run again.”

When HOPE Summit concluded, our cup ranneth over with friendship, renewed spirit, and Hope. I didn’t write a book. I wasn’t a keynote speaker. I didn’t arrive in a wheelchair. I never had chemotherapy or radiation. My dear friend, who I worked with in the East Greenbush plant, is going through chemo right now. I asked him to describe chemo to me. The list was long, and he concluded with, “Lois, I’m going to be a survivor like you.”

Our survival inspires others and gives others Hope too!

On November 4, 2012, I am running the New York City Marathon with my daughter Tara and my dear friend Jenny Lee. We are representing LUNGevity Foundation.

LUNGevity is the largest lung cancer nonprofit funding research into early detection and effective treatments of the disease. Our fundraising commitment is $8,000. The President of LUNGevity, Andrea Ferris, personally invited me to be their first entry in the NYC marathon.

Our mission is to raise awareness that LUNG CANCER IS THE NO. 1 CANCER KILLER and if it can happen to me, it can happen to anyone.

I’m not a loyal sports fan. I have my favorite teams, but when the event is near I always find myself rooting for the underdog. This is how I feel about LUNGevity. I have been given the platform to raise the awareness NOW… LUNGevity’s mission is to improve survival rates and promising research for early detection. That will save lives!

Will you join me in the fight against lung cancer? Every step is a step closer to a cure.

I believe in you…Thank you to my friends, family, and supporters (and LUNGevity!) for believing in me.

Lung cancer didn’t just happen to me. I believe it happened for me―so that maybe I can make a difference against this disease and for others.

With LUNGevity, I have HOPE.

On August 31, 2012, I celebrated LIFE and 6 years of being lung cancer-free!

Please celebrate with me by showing your support of lung cancer research.  

Please donate
http://events.lungevity.org/goto/teamgreen

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Donna Summer and I Have Something in Common

May 18th, 2012 - by admin

By Jon Filbert

Donna Summer passed away a couple of days ago and there has been an endless stream of media coverage on her life and her death.  She was a great performer and her songs were an imprint on my childhood.  In her 60s, she still had a lot of life to live. She was taken from her family and fans way too soon.

Before she died, Ms. Summer and I had something in common- lung cancer.

So many articles and reports have come out this week about the type of cancer Ms. Summer died from.  Many in the mainstream media failed to mention the cancer type at all, and today other news sources are writing about the lung cancer that “non smokers” get.

It’s my understanding from watching the news reports that Donna Summer and her family didn’t want anyone to know she was battling lung cancer.  Maybe they didn’t want people to think that she smoked …because why?  People who smoke deserve cancer and deserve to die from it?  I hope that wasn’t the case.  Unfortunately a lot of people who don’t know a lot about lung cancer subscribe to that theory. That’s the stigma facing people with lung cancer and that line of thinking is what has kept lung cancer desperately lacking for research dollars.

Lung cancer is supposed to be an old person’s disease; a disease that only affects elderly people who smoked their lives away and lived an unhealthy life. right?  Wrong.

Lung cancer can affect anyone regardless of gender, age or smoking history.  I’m 35.  And while I wasn’t a health nut I was young and relatively healthy when I was diagnosed 3 years ago with stage 4 lung cancer.  When people ask me if I smoked I let them know my cancer is genetic, but that doesn’t mean I’m any better than people who develop lung cancer after years of smoking…they deserve the same chance at survival as I do.

Let’s stop the blame and the stigma of lung cancer.  That’s the only way to show people that anyone can get lung cancer, like me.

In November 2011 I attended my first lung cancer event.  It was called Breathe Deep DFW and it was the first time I’d ever met another lung cancer survivor.  There were so many people and they were all there to raise awareness and life saving funds for lung cancer research.

This May, during Lung Cancer Hope Month, I attended the LUNGevity HOPE Summit for lung cancer survivors.  This conference is the only conference of it’s kind specifically for lung cancer survivors and it was the largest gathering of survivors ever!
I felt empowered and hope-filled.  The diversity of people in that room was amazing and no one asked anyone else if they had ever smoked.

It simply didn’t matter.

We were celebrating survivorship and the importance of research so that one day others who developed lung cancer would have a better chance to survive.

Ms Summer and I have lung cancer in common but I’m not keeping it a secret.

I am the face of lung cancer.

I’m asking you to care and to join us.

About Lung Cancer

• 1 in 14 Americans is diagnosed with lung cancer in their lifetime

• Lung cancer is the leading cause of cancer death, regardless of gender or ethnicity

• Lung cancer kills almost twice as many women as breast cancer and more than three times as many men as prostate cancer

• About 55% of all new lung cancer diagnoses are among people who have never smoked or are former smokers

• Only 16% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it’s caught before it spreads, the chance for 5-year survival improves to 52%

About LUNGevity Foundation

The mission of LUNGevity Foundation is to have a meaningful impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.

Through the support of critical research into the early detection and successful treatment of lung cancer, as well as providing information, resources and a community to patients and caregivers, LUNGevity is creating and sharing hope for cures, treatments and enhanced quality of life for lung cancer patients.

LUNGevity seeks to inspire the nation to commit to ending lung cancer.

For more information, please visit www.lungevity.org.

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For Us Everyday is 100%

March 22nd, 2012 - by admin

by Sara Ratzenberger

When I first met John, I knew that whoever he ended up with would be very lucky.  I was happy when he ended up with me.  I felt like the luckiest girl in the world.  We got married in August 2009.

A few months after our wedding our luck unfortunately started to change. I had a cough that started in December that wouldn’t  go away.  After being misdiagnosed with pneumonia, the cough lingered on.  Abnormal CT scans, bronchoscopy, CT guided needle biopsy, lots of blood work, all came back inconclusive.

So on July 23, 2010, I kissed my husband as they wheeled me off to do a lower right lobectomy/thoracotomy.  Five hours later I woke up to my teary eyed husband telling me how sorry he was, but that it was cancer.

I spent a week in the hospital.  John got a cot and stayed with me.  The day I was discharged, the doctor informed us that I was Stage IV Adenocarcinoma.  We were devastated; we had already read the statistics.  We went home and cried and talked.  John spent the next day doing research online and starting up a blog to keep family and friends updated.

He told me it didn’t matter what the statistics say, for us, every day was 100%.

He has continued that attitude for the past 17 months as we have endured more surgery, several “second” opinions, 3 different chemotherapy regimens, countless CT and PET scans, radiation for brain METs, and constant vomiting and other side effects on my part.  He is always at every chemo treatment, every doctor’s appointment, and every emotional breakdown.

John always took care of me, but since my diagnosis, he has stood strong to make sure our family of 2 survives this disease together.  I think about how I am not the only one who lost out on our dream to have children (I was 31 and John was 34 when I was diagnosed), the possibility of not getting to grow old together, and the hurt he deals with as well.

Each day is a new day.  Until recently, we used to work in the same office, which was wonderful.  He made sure I ate my lunch, got plenty of rest, drank my water, took my meds, kept anyone with a sniffle away from me, and made sure that I had a shoulder to lean on at anytime.

His hugs can make my day so much better.  His love is so strong; he keeps me fighting and keeps me positive!  We pray together every day for courage, strength, patience, and healing.  Without John as my partner, I know I would not be nearly as successful in this painful, difficult, emotional journey.

Since my diagnosis, John buys me flowers anytime he goes to the store by himself.  There are some weeks I get flowers several times as he picks up my prescriptions, goes to get me a food I am craving (as long as I am eating!), or just to do the regular shopping.

My husband truly is a lifesaver and I am very lucky to have him.

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Photo:  John, Sara and their puppy Greta

Sara and John have participated in the Lung Hill Run in Kansas City MO and in Breathe Deep Seattle WA.

Sara is a member of LUNGevity’s online Lung Cancer Support Community and will be attending this years 2012 LUNGevity HOPE Summit, a summit for lung cancer survivors.

Registration is now open for the LUNGevity Hope Summit.  Apply today.

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