Posts Tagged ‘seattle’

Celebrate and Hope

June 18th, 2012 - by admin

Eva was 46 when she heard the words, “stage IV lung cancer” last year.  She wasn’t a smoker and lived an athletic and healthy lifestyle, so the diagnosis came as a shock.

After not feeling well and experiencing shortness of breath while biking, Eva went to see her primary care provider.  A chest x-ray revealed fluid around her lung and she was referred to a pulmonologist to have the fluid drained.

Because symptoms of the disease often don’t present until the later stages and because there is no early detection test for lung cancer, Eva’s cancer was stage IV. Thankfully her primary doctors’ swift actions sent the ball rolling immediately.

“I have been receiving state of the art care since the beginning, “Eva says.  She gets treated at Seattle Cancer Care Alliance.

Eva also believes in the importance of support and a caring network of supporters.  She is fortunate to have had friends accompany her to treatments and coworkers donate their leave time so that she didn’t have to face more financial hardships, but she knows that’s not the case for everyone.

For those who don’t have access to local support, organizations like LUNGevity provide online support for anyone globally.  LUNGevity is the largest private funder of lung cancer research and also offers the largest online support network for those affected by lung cancer.  LUNGevity also understands the importance of education and survivorship and hosts the only lung cancer specific national summit for lung cancer survivors, called the HOPE Summit.

This year Eva was able to attend Hope Summit May 4-6, 2012 in Washington DC.  It was a weekend of educational sessions and celebration of survivorship.  The participants ranged in age from 26-71 and travelled as far as Scotland to attend.  Since the summit, empowered lung cancer survivors have given interviews, raised awareness at survivor events and participated in raising funds for lung cancer research.

Recently Eva participated in a 5K mud run with 14 obstacles.  She completed the entire event!

Eva is also involved in Breathe Deep Seattle, a LUNGevity event that raises support and funds for lung cancer research.

“My greatest hopes for lung cancer, besides a cure, are to decrease the stigma surrounding it and to increase funding for lung cancer research.  I wish people wouldn’t ask me if I smoked.  The stigma and under-funding are discouraging.”

Eva loves to spend time with her children, her friends, her dog and participating in outdoor activities and events.

She hopes you will join her August 11, 2012 at Lincoln Park for Breathe Deep Seattle to celebrate survivorship and hope.

 

 

About Breathe Deep Seattle:

Breathe Deep Seattle was started to honor Sara Ratzenberger and others who have fought or are fighting lung cancer. In 2010, at 31 years old, Sara was diagnosed with stage lV lung cancer after living for six months with a misdiagnoses of pneumonia. Because Sara has never smoked and has always been healthy and active, even her own medical team did not consider lung cancer a possibility when screening tests came back inconclusive. Only after undergoing intensive lung surgery was her lung cancer finally discovered. Sara is currently in treatment. We want others to know that lung cancer is not a smoker’s disease, and that lung cancer has no boundaries. Please join us to raise awareness of Sara’s situation and that of many others. We want to make sure that the next person and the next generation are diagnosed early and accurately.

Register to participate.

Share this:

(Not) Being There

May 17th, 2011 - by admin

by Amy May

This isn’t about me. This surprising, frustrating, painful, and yet hopeful situation isn’t about me at all.

But, I have to do something.

I’ve always been close to my brother, John. We grew up in small town Kansas with our Mom and Dad making wonderful family memories. He is such a great friend and a compassionate, funny, and smart person.

In 2009, I was the “best (wo)man” in his wedding to Sara.

She’s amazing and gorgeous and sweet and the kind of person you always hope your awesome brother finds. They still live in Kansas, while me, my husband, and daughter live in Seattle, Washington. Our parents live in North Carolina.

Although, separated by distance, we remain a close family.

In 2010, we were shocked to learn 31 year old Sara’s diagnosis of stage IV lung cancer. She had lived for six months with a misdiagnosis of pneumonia. Because Sara has never smoked and has always been healthy and active, her own medical team did not consider lung cancer a possibility when the screening tests came back inconclusive. Her lung cancer was finally discovered after undergoing intensive and painful lung surgery.

We were all bewildered at the diagnosis, and, then frantically began the search for the answer.

I pray, I wish, I cry, and I scream for a way out of this for them, and I want it now.

What else can I do as they navigate the very unclear and underfunded world of lung cancer treatment options and clinical trials, but stand by and wait? They have many friends and family near them, to cook them dinners, meet for a coffee, and take walks, but not me. I can only awkwardly answer texts and email, and try to judge my brother’s mood (which is almost always confident and determined) by the tone of his voice on the phone. I can send an occasional care package, never really knowing whether it’s helpful or needed.

EnterLUNGevity.

I flew to Kansas City to participate on Sara’s team in the Lung Hill Run for LUNGevity in November 2010. When I returned, I called LUNGevity to see how I could help someone in Seattle put on a race. Diana Fusco and Mandy Holcomb, from LUNGevity, basically said “YOU can put on the Seattle race.” For some reason, I agreed. I am scared out of my mind, but I am so thankful for this opportunity to do something! I just want to earn a TRILLION dollars for lung cancer early detection and treatment research. I’m dedicated to this, and so is the amazing Breathe Deep Seattle planning team.

Sara is my inspiration. The love and partnership that her and John have is so beautiful. Although, it would be so much better if I was closer to them, I have come to realize that I don’t need to be. I can make a dent in my own part of the world, for Sara, for John, and for everyone else fighting lung cancer.

Now, I can’t imagine just standing by and waiting for something to happen.

We have to do this – - we have to work together to end lung cancer!

Share this: